Parallel session 14.30 - 16.15

Patient engagement: how end-users can help you develop better medical products

Input from end-users can make innovations more successful by complementing technical knowledge with practical experience. In the life sciences and healthcare environment, involvement of end-users is commonly called ‘Patient Engagement’. We recognize the importance of end-user involvement for the success of new healthcare developments.

During this session, speakers will share experiences and learning points from different perspectives. They will discuss success stories as well as common challenges and share ideas on how to overcome them. You will hear about experiences of engaging patients at different stages of developing a medical product, ranging from research & development, through registration, to bringing the product to the market successfully.

Confirmed speakers

  • Veronica van Nederveen, Dutch Clinical Research Foundation, The Netherlands
  • Nathalie Bere, Patient Engagement Specialist, European Medicines Agency, The Netherlands
  • Elizabeth Vroom, Director at the Duchenne Parent Project and Board Member of EURORDIS Rare Diseases Europe, The Netherlands
  • Emilio Merlo Pich, Executive Director at Takeda, Switzerland

Patient engagement at EMA; a progressive journey
In this presentation, Nathalie Bere will highlight how EMA has worked with patients and consumers over the years in a progressive manner to ensure engagement evolved and expanded through mutual learnings. The challenges, as well as the benefits of mutually beneficial interactions, will be covered.